Category: Medication

So you’re in Seattle, with GregR

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It’s finally here! My podcast with GregR, the morning dude on 107.7 The End. The first attempt to record this was junked due to technical difficulties, but we gave it another go. I had a ton of fun chatting with GregR before we headed over to Emerald City Comicon.

Check it out would ya!

                                                    itunes logostitcher so you're in seattle Multiple sclerosis awareness

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kid in toon link costume at kndd radio station

Big props to my man GregR for having me on his podcast. Check out other episodes here, also find GregR on Twitter @gregr1077.

Thank you Meghann Prouse Indie Photographer for the photos.

-wheels

Injection and supplies for ms medication

Pins and Needles, and Needles

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There are many different DMTs (Disease Modifying Therapies) for Multiple Sclerosis. I am currently on one that I inject 3 times a week, much better than the daily version I was previously on. The injection is subcutaneous, meaning I inject it just under the skin, similar to a diabetic injecting insulin. Not bad when you compare it to the first meds I was on that had to be injected weekly into the muscle (Intramuscular).

I inject myself in the hopes that it will slow the progression of my MS. Even though I take my medication I still gain new lesions. It’s tough to say how many more I would get without it.

My talented wife has asked to document my journey with MS. Together we will be sharing our ups and downs along the way. It was only fitting to start with my injections. So I sat on the couch; sweat pants, belly rolls and all.

If seeing needles are not your thing, feel free to close this window.

This is my life with MS.

man setting up ms medication injection Injection and supplies for ms medicationlifestyle photo of man looking at injectable medication

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All of the beautiful images were taken Meghann Prouse Indie Photographer. Check this rad chick out at www.photomegs.com

-kp

Adventures in the dark

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What do you do when the power is out?

Getting up in the morning without power seems like it wouldn’t be such a big deal…until you realize your electric kettle is useless.  So what exactly is one to do in this situation?  Bust out a sauce pan full of water, 3 slices of bread and fire up the propane grill, of course.  I don’t know why we haven’t been doing this every morning. (Disclaimer: if you decide to do this please remember to leave the grill outside). How did it turn out? The bread was really good.  The water……eh.  It was a tad off, but fulfilled the morning ritual.

After the power being out for 10 hours we had to start thinking about the fridge.  The fridge is not only home of the food we eat, but it’s also home to my MS medication.  A single box of syringes costs over $4k, and Medicare doesn’t jump to replace them.  Time to pull out the coolers and ice the important things. So off we went to get ice from the corner store and more importantly, a real cup of tea from Scout Cafe and Honor Bar.  We highly recommend this place.

We got home just in time to watch the tree service dudes remove the tree that had been suspended by the power lines.  With the last little bit of daylight we prepped the house for the impending darkness.  We collected all the candles and flashlights and we rearranged the living room so we could bundle up and sleep around the fire.  Time to think about dinner.  This was an easy (but not so healthy) choice…Pizza!

With darkness upon us, our bellies full, and our phones charged from driving around in the car, we settled in.  What is there to do when the power is out?  Play card games!  One of our very favorites is Uno.  It can get pretty heated in the Prouse House when the Uno cards are out.  After a few games we switched to a goofy card game called “Would You Rather…?”.  This game is great. Example: “Would you rather, eat through your belly button or poop through it?”

After games we all passed out huddled around the fire.  The power came on sometime after midnight but that wasn’t going to stop this living room campout.  Sometimes it’s the little things that make the adventure.

Brownsville tree leaning on power lines

photo by @yeahrockout

grilling power out toast boiling water

photo by @yeahrockout

 

 

Bremerton coffee shop

 

Scout Cafe and honor bar bremerton

photo by @yeahrockout

 

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family playing uno while power is out

What awesome things do you like to do when the power is out?

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ANNOUNCING WHEELS & RED

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this is our life portrait

I am so stoked to get Wheels & Red up and going. It’s where I am going to write about my adventures in life with MS. It will be our Adventure Log.  What can you expect from this?  Everything. We sometimes forget that we have this really cool thing in common: we are all human.  We all share this amazing planet with one another.

I didn’t start Wheels & Red just to share our story. It’s also to help spread awareness and education about MS.  I love talking to people, all people. Seems like everyone I talk to knows someone battling MS.  The older I get the more I realize that making money isn’t everything.  Life is about doing the things that make you happy, because they make you happy.  I’m always inspired to see people doing what they love.  That’s why I will be sharing conversations with other rad people we meet along the way.  I want you to know that life can be anything you want it to be.

If our journey gives you the warm fuzzies and you feel so obliged to throw a little monetary support our way, you can do that here: Creations. We’re also happy to receive your good vibes, high fives and friendly comments or messages.

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Thank you all for your love and support.  My family and friends rock!  I’m excited to share Wheels & Red with you!