Let’s talk about chronic pain and cannabis

There’s something I’ve noticed throughout my years of participating in MS projects – a recurring theme no matter the brand or organization: it’s not cool to talk about my use of cannabis for my chronic pain. Talking about chronic pain is not usually an inspiring topic. And for national brands, talking about cannabis might notContinue reading “Let’s talk about chronic pain and cannabis”

Disability After Dark W/ Andrew Gurza

I had a great conversation with Andrew Gurza about MS, disability and all things we tend to keep in the dark about disability. It was refreshing to talk about life with a disability without having to censor the real stuff. We talked about toxic positivity, life with progressive MS, intimacy and a good ol’ piss-yourself-in-publicContinue reading “Disability After Dark W/ Andrew Gurza”

Parking with Disabilites

 I have written about this before but I think it’s a good time for a refresher. All too often I see things from the disabled community about how a local “hero” has left a note shunning them for not being disabled and parking in a disabled spot; or, they even go a step further and resortContinue reading “Parking with Disabilites”

I Like Canes

I have shown you one of my canes already but I have another favorite. Yup, I have multiple assistive devices. You don’t wear the same shirt everyday, why would I rock the same cane. I am lucky to have such a talented wife to photograph this journey we are on. I asked her to takeContinue reading “I Like Canes”

Through my eyes

– Optic Neuritis – For a lot of people Optic Neuritis is their intro to MS.  Eye pain, loss of color and blurry vision.  What happens is the Optic Nerve gets inflamed, and the inflammation prevents the nerves from transmitting the visual information to the brain.  The closest thing I have found to describe itContinue reading “Through my eyes”

Pins and Needles, and Needles

There are many different DMTs (Disease Modifying Therapies) for Multiple Sclerosis. I am currently on one that I inject 3 times a week, much better than the daily version I was previously on. The injection is subcutaneous, meaning I inject it just under the skin, similar to a diabetic injecting insulin. Not bad when youContinue reading “Pins and Needles, and Needles”

The Girl with the Purple Cane

Meet Liz Jackson. She is an amazing person who has a neurological disability similar to MS. Liz lives in NYC and is breaking down the stigma of using assistive devices. She rocks a cane and rides a bike. She is The Girl with the Purple Cane.   I found her when I was learning aboutContinue reading “The Girl with the Purple Cane”

Trek to Cape Flattery

We had a free weekend last summer and we decided to make the trek to Cape Flattery Washington. You can’t get anymore Northwest in the lower 48 than Cape Flattery. The drive up there is beautiful. Minus the super windy road that made the dog upchuck. Still worth it. So many cool spots to hit on the wayContinue reading “Trek to Cape Flattery”