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Tag Archives: grilling

Adventures in the dark

A look into our day without power.

Posted byKellenJanuary 23, 2015January 23, 2015Posted inAdventures, Daily Life, MedicationTags:card games, family life, grilling, no power, PNW, tea5 Comments on Adventures in the dark
Bodies are weird and mine is extra. Results are in and it looks like I’m having a strange response to the MS meds, but it’s nothing too serious for now! I just need another hit of the zaza, baby. Sacrificed 14 tubes of blood to the lab gods today. Now we wait! 🤙 Headed to see a Hematologist next week because my bloodwork is off. Here’s to hoping it’s none of the things that google said! 😅 Chill birthdays with portraits and spice cake are my jam. Thank you @photomegs for the awesome 38th bday portraits and my fav cake! Having a progressive disease has changed how I view the future for sure, but at least I know imma be stoned and smiling when I get there. So grateful for all the bday love! 🖤 ✨Happy Birthday @photomegs✨ 5 months on tysabri and only 1, possibly 2 new lesions. That’s not bad considering the last MRI was 8+ new lesions, gonna take another look next month. Glad the infusions are getting easier too. Link in bio to the whole vid. Go check it out. Feels good to get out with you. Second infusion still no super powers. I’ve been open about not taking any DMTs for my MS since 2016. I was still progressing and was tired of all the injections and side effects. I had been on self-injectables for years, and then after trying Tysabri once, I got in my own head about how weird it felt and the potential risks and decided to stop meds completely. Since then, I’ve tried so many other things: diet, lifestyle, a shit ton of supplements; and those still matter. But when my latest MRI showed 8+ new brain lesions and a spinal cord that looks like it’s been pancaked by a drunk dump truck driver, I finally made the call to get back on the juice. It feels strange to be full circle and actually feel hopeful again. And hey, if it doesn’t work out, at least we got some cute bathroom selfies. 💁‍♀️

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