There’s something I’ve noticed throughout my years of participating in MS projects – a recurring theme no matter the brand or organization: it’s not cool to talk about my use of cannabis for my chronic pain. Talking about chronic pain is not usually an inspiring topic. And for national brands, talking about cannabis might notContinue reading “Let’s talk about chronic pain and cannabis”
I had a great conversation with Andrew Gurza about MS, disability and all things we tend to keep in the dark about disability. It was refreshing to talk about life with a disability without having to censor the real stuff. We talked about toxic positivity, life with progressive MS, intimacy and a good ol’ piss-yourself-in-publicContinue reading “Disability After Dark W/ Andrew Gurza”
I was diagnosed with Multiple Sclerosis at 25 years old. It was hard enough coming to terms with having a lifelong chronic illness at such a young age, let alone think about progression. But I was ready to fight; and with my wife and son by my side, I never missed a doctor’s appointment. IContinue reading “Progressive MS – A Family Journey”
Recently the folks at MS Connection reached out to see if Meg and I were interested in an interview for a third party – we’re always down for sharing our thoughts, and usually do a handful of interviews every year. For this one, we were asked about how MS has impacted our lives outside theContinue reading “MS and the little things”
I have written about this before but I think it’s a good time for a refresher. All too often I see things from the disabled community about how a local “hero” has left a note shunning them for not being disabled and parking in a disabled spot; or, they even go a step further and resortContinue reading “Parking with Disabilites”
This week Ted Cruz recently congratulated a woman on her struggle with Multiple Sclerosis. My first reaction was “That’s a weird choice of words…”, and the more I thought about it the more I started to think the congrats wasn’t too far off. We should get this out of the way now, I don’t agreeContinue reading “Congrats on Your Struggle”
With November being National Caregiver Month, I wanted to say thank you to everyone out there helping people like me. I especially want to thank my wife Meg for the unwavering support. I can’t imagine this journey without you! While all caregivers may do similar tasks, what they mean to the people they care forContinue reading “National Caregiver Month”
Thank you all so much! I am now over 3 weeks into detox and feeling better. Check out my update from last week! I Just wanted to take some time to say Thank You to the best group of people I could surround myself with!
There is hope at day 5!