Tag Archives: Life with MS

The distance between who I was and who I am

Multiple Sclerosis changes you in ways that feel slow from the inside but shocking to the people who haven’t seen you in a long time. I keep thinking about how the last version of me most people remember isn’t the version that exists now. It’s kinda weird. They carry this snapshot of who I usedContinueContinue reading “The distance between who I was and who I am”

Progressing, but still here

I’ve been dodging this post, not because I thought I could ignore it forever, but because putting it into words makes it real. Like, if I don’t say it out loud, maybe I can trick myself into thinking it’s not as bad as it feels. Writing this means acknowledging how much my body has changed, howContinueContinue reading “Progressing, but still here”

Let’s talk about chronic pain and cannabis

There’s something I’ve noticed throughout my years of participating in MS projects – a recurring theme no matter the brand or organization: it’s not cool to talk about my use of cannabis for my chronic pain. Talking about chronic pain is not usually an inspiring topic. And for national brands, talking about cannabis might notContinueContinue reading “Let’s talk about chronic pain and cannabis”

Congrats on Your Struggle

This week Ted Cruz recently congratulated a woman on her struggle with Multiple Sclerosis. My first reaction was “That’s a weird choice of words…”,  and the more I thought about it the more I started to think the congrats wasn’t too far off. We should get this out of the way now, I don’t agreeContinueContinue reading “Congrats on Your Struggle”

National Caregiver Month

With November being National Caregiver Month, I wanted to say thank you to everyone out there helping people like me. I especially want to thank my wife Meg for the unwavering support. I can’t imagine this journey without you! While all caregivers may do similar tasks, what they mean to the people they care forContinueContinue reading “National Caregiver Month”

Adventure: Orcas Isalnd

Meg was lucky enough to score another assisting gig up in the San Juan Islands, and this time there was enough time and space for me and Tuck to tag along (thanks to Catherine and Michael Abegg for giving us the room to stay in!). The weekend was absolutely amazing, even though I managed toContinueContinue reading “Adventure: Orcas Isalnd”