Tag Archives: Disability

Progressing, but still here

I’ve been dodging this post, not because I thought I could ignore it forever, but because putting it into words makes it real. Like, if I don’t say it out loud, maybe I can trick myself into thinking it’s not as bad as it feels. Writing this means acknowledging how much my body has changed, howContinueContinue reading “Progressing, but still here”

Let’s talk about chronic pain and cannabis

There’s something I’ve noticed throughout my years of participating in MS projects – a recurring theme no matter the brand or organization: it’s not cool to talk about my use of cannabis for my chronic pain. Talking about chronic pain is not usually an inspiring topic. And for national brands, talking about cannabis might notContinueContinue reading “Let’s talk about chronic pain and cannabis”

Disability After Dark W/ Andrew Gurza

I had a great conversation with Andrew Gurza about MS, disability and all things we tend to keep in the dark about disability. It was refreshing to talk about life with a disability without having to censor the real stuff. We talked about toxic positivity, life with progressive MS, intimacy and a good ol’ piss-yourself-in-publicContinueContinue reading “Disability After Dark W/ Andrew Gurza”

Progressive MS – A Family Journey

I was diagnosed with Multiple Sclerosis at 25 years old. It was hard enough coming to terms with having a lifelong chronic illness at such a young age, let alone think about progression. But I was ready to fight; and with my wife and son by my side, I never missed a doctor’s appointment.  IContinueContinue reading “Progressive MS – A Family Journey”

Parking with Disabilites

 I have written about this before but I think it’s a good time for a refresher. All too often I see things from the disabled community about how a local “hero” has left a note shunning them for not being disabled and parking in a disabled spot; or, they even go a step further and resortContinueContinue reading “Parking with Disabilites”

Congrats on Your Struggle

This week Ted Cruz recently congratulated a woman on her struggle with Multiple Sclerosis. My first reaction was “That’s a weird choice of words…”,  and the more I thought about it the more I started to think the congrats wasn’t too far off. We should get this out of the way now, I don’t agreeContinueContinue reading “Congrats on Your Struggle”

National Caregiver Month

With November being National Caregiver Month, I wanted to say thank you to everyone out there helping people like me. I especially want to thank my wife Meg for the unwavering support. I can’t imagine this journey without you! While all caregivers may do similar tasks, what they mean to the people they care forContinueContinue reading “National Caregiver Month”