Author Archives: Kellen

MS AWARENESS IN A DUMPSTER FIRE

March is MS Awareness Month, which means it’s time for the usual mix of orange ribbons, inspirational stories, and well-meaning but kinda empty “We see you!” messages. Don’t get me wrong—I appreciate the awareness. But you know what would really make me feel seen? A drug that actually repairs the damage MS has done toContinueContinue reading “MS AWARENESS IN A DUMPSTER FIRE”

Progressing, but still here

I’ve been dodging this post, not because I thought I could ignore it forever, but because putting it into words makes it real. Like, if I don’t say it out loud, maybe I can trick myself into thinking it’s not as bad as it feels. Writing this means acknowledging how much my body has changed, howContinueContinue reading “Progressing, but still here”

Let’s talk about chronic pain and cannabis

There’s something I’ve noticed throughout my years of participating in MS projects – a recurring theme no matter the brand or organization: it’s not cool to talk about my use of cannabis for my chronic pain. Talking about chronic pain is not usually an inspiring topic. And for national brands, talking about cannabis might notContinueContinue reading “Let’s talk about chronic pain and cannabis”

Disability After Dark W/ Andrew Gurza

I had a great conversation with Andrew Gurza about MS, disability and all things we tend to keep in the dark about disability. It was refreshing to talk about life with a disability without having to censor the real stuff. We talked about toxic positivity, life with progressive MS, intimacy and a good ol’ piss-yourself-in-publicContinueContinue reading “Disability After Dark W/ Andrew Gurza”

Progressive MS – A Family Journey

I was diagnosed with Multiple Sclerosis at 25 years old. It was hard enough coming to terms with having a lifelong chronic illness at such a young age, let alone think about progression. But I was ready to fight; and with my wife and son by my side, I never missed a doctor’s appointment.  IContinueContinue reading “Progressive MS – A Family Journey”

MS and the little things

Recently the folks at MS Connection reached out to see if Meg and I were interested in an interview for a third party – we’re always down for sharing our thoughts, and usually do a handful of interviews every year. For this one, we were asked about how MS has impacted our lives outside theContinueContinue reading “MS and the little things”