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Tag Archives: sleep

Fatigue

Check out my latest MS Connections post.

Posted byKellenMay 1, 2015Posted inDisability, Dogs, Educate, Fatigue, MS, MSConnection, Multiple Sclerosis, PNW, Uncategorized, Wheels and RedTags:border collie, boston, dog, PNW, sleep1 Comment on Fatigue
MS can be isolating but this is a great reminder we are not alone. So glad to be  a part of this community! Yesterday was our 15 year wedding anniversary! I love our tradition of taking portraits but this one was special, our 14 year old took these photos of us. The rest of the day was full of pizza, ice cream and Mario Kart, just the way we like it. Thank you @photomegs for always being there and making life with a progressive illness so much better. I’m excited to face the unknown with you! 🫶 Cheers to another 420, just a reminder cannabis is medicine that people like me use daily to live as pain free as we can. Thanks for coming to my TED Talk. Now let’s burn one, where’s my lighter? For all the new peeps that just followed thank you, my name is Kellen and I was diagnosed with MS in 2010. After failing to see the meds slow things down I choose to stop all DMTs, the side effects weren’t worth it at that point. That may change in the future. I’m working on living the most pain free I can with cannabis and love it. My goal is to remove the stigma of medicinal cannabis and promoting safe, affordable access. I’m glad you guys are here to join the conversation. 🧡 You can’t stop the waves, but you can learn to surf 🤙 Ma & Pa, the porch 2022 😻 Finally added a new mobility aid to the arsenal, thanks to the rad folks who helped sponsor these badass crutches. I love them so much. It’s so nice to feel stable-ish on my feet again. On this National Progressive MS Day, I’d like to remind everyone that disabled people are constantly expected to work for free to spread encouragement and hope while also providing education and championing for a cure they may never see (or be able to afford). All the while attempting to navigate an inaccessible world with the pain, fatigue, and added expense that having Multiple Sclerosis brings. I cannot wait to see this film. I love how open and honest @lydiaemily is about facing life and your passions with the weight of a disabling disease. Glad we got a chance to meet at the Portland mural. Keep kicking ass my friend! ✊ Had a super chill birthday a few days ago with Meg and Tuck. I love our tradition of birthday day portraits. Turning 37 and having MS for 12 years it’s hard to not get lost in what the future will hold, then I remember @photomegs has literally picked me up off the forest floor, in the rain then carried up some stairs. (hot tubs are not my friend) Things have been tough before and we’ve kicked it’s ass, can’t wait to keep kicking ass with my ride or die @photomegs 🖤⚡️

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